Posted on Leave a comment

Saajan’s First Holiday to Gran Canaria at The Lopesan Baobab Resort

It was definitely a trip we’d longed for! If you’ve been following our blog for a while, you’ll know that due to the surprise that was Saajan’s heart condition, we had to cancel our first holiday to Punta Cana – that holiday symbolised a lot for us as a family. It signified the “proper” start of our family, new beginnings and a fresh start. It also meant family time together to absorb all that we’d been through over the last few months. Little did we know that that chance at that time would be robbed from us as we’d have to embark on a journey that is every parent’s nightmare – that of open heart surgery!

With that behind us now, and with Saajan recovering so well, we decided it was time to get away! Our last trip as a family was to Santorini almost a year and a half ago while Saajan was still in my tummy!

My sister, Goov, recently got married and we decided it would be a nice time to go away with my parents and my sister, Harv, to give them a break after the wedding and it also would be great for us to have 3 extra pairs of hands with us!

With his surgery only 3 months behind us, we decided it would be sensible for our first trip to be somewhere close to home just incase. We decided Gran Canaria would be perfect as the weather is great, it’s a short flight (3.5 hours) and also there is no time difference minimising any disruption to our routine! It just seemed like an “easy” option compared to the others. Other than Santorini, we’d not done any European destinations with Arjun before – he’s such a jet setter, we’ve travelled to Dubai a few times, Abu Dhabi, the Maldives, Singapore and Bali!

We booked our trip with British Airways and the carrier was Iberia Express. Thankfully it was a short flight as the plane was definitely the smallest aircraft we’ve ever travelled in! It was a really tight squeeze for me let alone Preetam at 6’3!! The aircraft was super hot and most parents had stripped their restless babies down to their vest including us! The staff were really friendly and hospitable. No meals are provided on the flight but you’re able to purchase food and drink.

 

Thankfully we had my family with us – Harv was an absolute God send with the children as always!

I used my own in flight tips for both legs. On the way out, Arjun was a dream and Saajan wasn’t too bad. They shared the iPad and Arjun was entertained by a magazine we picked up on the way at the airport as his surprise toy.

 

Our hotel had kindly pointed us in the right direction for a transfer company who had kindly also arranged car seats to be included in the vehicle.

We arrived in Gran Canaria at about 9.30pm and by the time we got to the hotel it was about 10.30pm. Despite it being a short flight, we were all quite tired.

Upon pulling up at the hotel, we were instantly wowed. We were recommended the hotel by our good friends and we definitely weren’t disappointed on first impressions.

The hotel boasts a beautiful African theme – the attention to detail is second to none. My parents, who are from Africa, said it made them feel right at home! The impressive architecture is absolutely breathtaking! As we entered, it felt magical walking across the wooden bridge over a water landscape and subtropical gardens. The reception area was just as beautiful – the wooden posts, tree stump tables, and animal print upholstery.

The wider premises boast huge tropical gardens with 9 swimming pools, ponds, waterfalls and sand beaches with African huts with animal statues dotted around – always great for a photo opp!

In the centre, there is an absolutely stunning African lodge. The interior design is phenomenal with large straw (what look like) jelly fish hanging from the ceilings, unique seating areas captivating the African culture and high ceilings. The lodge was by far my favourite part of the whole hotel. It reminded me a little of the Maldives for some reason!

The resort is by far one of the most beautiful properties we’ve stayed at.

The reception staff were really helpful and friendly especially towards the children.

Image credit: Lopesan Baobab Website

      

We’d selected a senior suite as we figured we’d need the extra space with two kids in tow and we are so glad we did! It was just beautiful and at approximately 68m², so so spacious.

The room had ample storage space for our entire luggage – we were all able to hang most of our clothes up and store our suitcases in the cupboards.  The suite itself had so much space so I was able to set up mini stations such as nappy changing items, poolside bits, feeding items and sterilising bits. The space really helped with being organised.

 

The bedroom was huge even with a cot in it! It also comes with a small sofa and desk and a TV with a sliding wooden cover. There’s a frosted picture panel between the bedroom and the bathroom which is a nice feature. The main bed had a beautiful snakeskin headboard and was huge and super comfy and there were lots of extra pillows and duvets if we needed them.  There was also a sofa bed in the lounge. There was a sofa in our room with a small coffee table and a desk. Arjun often used both to do colouring and play with his toys. There was direct access to the balcony from the bedroom as well as the lounge area.

 

Our room overlooked the pool and to the right of the balcony we had a view of the sea. The balcony area had two beautiful sun loungers which I often used to take beautiful shots of our littles! It was a nice place to relax when the kids were napping.

The bathroom was wow! The toilet was a large room. There were his and her sinks with a huge mirror (I love mirrors!).  The sinks were large enough to bathe Saajan in. The wooden tree detail is gorgeous and the little soap dish was my favourite thing! The shower was a really large room which was handy as it meant we could fit in when giving Arjun a shower over a bath. The only down side was the lighting was quite dim making it difficult to do my make up!

The bath tub was really big and Arjun loved having a bath (once we’d convinced him to get in!).  He had hours of fun splish splashing about.

The lounge was really spacious with a sofa, a TV and a dining table and chairs. We found the extra space so handy.

Just a pre warning, there is a charge for things like using the safe, for wifi and for an ironing board.

We arrived at the hotel quite late, about 10.30pm really hungry and were quite disappointed with the lack of a hot food room service menu at that time.  There were only cold foods available and barely anything for vegetarians.  Just a heads up if you have a flight that lands in fairly late!

The breakfast at the hotel was exquisite – the best by miles that I’ve seen in Europe.  They had fresh egg stands for omelettes and fried eggs, fresh fruit, a huge selection of cheese and breads, cereals, pastries. I could go on and on! It was really good for vegetarians – I particularly enjoyed their roasted vegetables, sautéed potatoes and grilled tomatoes with basil. I obviously had my daily crepe with Nutella for breakfast dessert too! It was a great opportunity for us to kick start Saajan’s weaning too.

Unfortunately for us, the lunch time and dinner time buffet options didn’t quite live up to our expectations based on breakfast. The selection looked amazing for non vegetarians however for us it was extremely limited.  Surprising considering the huge shift in vegan and vegetarianism! We basically lived of pasta, pizza, salad and chips daily for the first three nights as we were half board.

By the fourth night we were quite bored of the food and decided to venture out to some of the local restaurants which are located by the sea just a short walk away.  It was a shame as our half board dinner went to waste for four nights but half the fun of a holiday is the food!

We found the restaurant staff really pleasant and smiley however their English was quite limited.  One evening I asked what a particular ingredient was (I wasn’t sure if it was meat) and the gentleman wasn’t able to tell me it was mushrooms.

There was also no real desire to accommodate us – for example, one evening there were roast potatoes with bacon, we requested some plain potatoes without the meat if possible when the next batch was cooked and were declined.  The same happened the next evening with peas that included ham. Our stay was quite a let down in that sense – it’s definitely the most unaccommodating hotel we’ve stayed at food wise.  I met with the hotel catering manager and all she was able to offer us was a gluten free menu which just included gluten free pastas and pizza and so wasn’t very helpful sadly!

 

This was the only real let down during our stay but thankfully the fabulous location of the hotel meant that we were able to get pretty much whatever we fancied outside. The added bonus of having dinner outside was the beautiful view of the sunset by the sea!

I’d highly recommend Misbah for Indian food – the food was delicious and the restaurant overlooks the sea.  We also really enjoyed Sushi Mex which was a Japanese/Mexican restaurant again with a view of the sea and a gorgeous sunset.  There are several restaurants located in close proximity to these restaurants. There is also a small shopping centre and a few supermarkets right outside the hotel to grab snacks and other essentials which we visited almost daily!

Our favourite dessert place was Mar Cafe which was located a few minutes from the hotel.  They did the best Nutella crepes I’ve ever tasted and we visited for dessert way more times than we should have! The staff were really friendly and it’s a nice little casual place to catch a coffee and dessert after dinner.

 

Just outside the hotel, there is also an arcade place which Arjun visited daily with his daddy. I loved the location of the hotel because of how close everything was!

The hotel boasts 9 swimming pools, 2 of which are children’s pools.  We managed to see 6 pools in total. Our favourite was the lazy river one! It’s a shame there were no water slides at any of the pools bar the children’s ones.  However there is a beautiful waterfall by the bar at the main pool.  Most of our days were spent by the swimming pool relaxing! There were activities throughout the day such as Zumba and water aerobics which you could dip in and out of – Arjun, Harv and I had fun!  Most of the sun beds are located in gravel like sand which wasn’t great – it was a little painful to walk on to be honest!

 

Again, the food was limited by the pool – the only thing they had for vegetarians was a salad or a cheese and tomato with apricot chutney sandwich.  When we requested no chutney for Arjun, they said they’re unable to. My favourite thing to have by the pool was definitely the iced chocolate drink!

We did eat lunch at the Pili Pili restaurant once – the vegetarian lasagne was delicious!  This restaurant isn’t included in the half board option.

Despite the hotel being advertised as a beach resort, this is a little misleading.  The beach is about a 10 minute walk but it is so worth it! I’d recommend taking towels with you if you don’t wish to rent sun beds.  We purchased an umbrella and sat on the floor on towels as we wanted to be close to the sea front.  The beach was beautiful – the sand felt like a mattress and we really enjoyed watching the sunset!

 

      

The kid’s facilities at this hotel are by far the best I’ve seen – perhaps I’m more aware of it now as i have a toddler that needs a little bit of entertainment! The hotel’s mascot, Panchi, visits the children at breakfast every morning – the first day Arjun was sceptical but by the last he was running up to Panchi and giving him a great big bear hug! Panchi greets the children at their seat so not to distract them from their breakfast.

After that, Panchi and his team head off to the stage by the main pool and perform a little dance where the children can join in if they wish to do so.  It’s usually a Daler Mendhi tune so very close to home for us! Haha!

Panchi then comes out again at night for the Mini Disco.

There is a dedicated kid’s club where children older than 4 can go, under 4s require parental supervision.  The girls that work at the kid’s club were always so bubbly and friendly – i have no idea whwre they get their energy from! They work from morning to night.

There are two swimming pools at the kid’s club – one for little babies and one for toddlers.  Arjun went to the kid’s pools twice during our stay but was happy paddling about in the bigger pools with us.

He loved getting his face painted and also colouring in.  There is also a kids indoor area with soft play bits in.

There were various children’s activities that also take place throughout the day.

While Arjun had his fun, Preetam and I made the most of having babysitters to hand and so went for a Spa Experience at the Wellness Spa Corallium which is located at the sister property, Lopesan Costa Meloneras, across the road. Preetam’s not a spa kinda guy but we both really enjoyed the experience which usually lasts about four hours. We enjoyed it so much so that both of us fell asleep at some point during it! The experience consists of a unique circuit style spa experience using treatments that use water at different temperatures to improve the functioning of the muscles. Preetam’s favourite room was definitely the womb room and mine was the lava relaxation dome!

The hotel has it’s own gym which is adequate. However just by the exit, there is also a gym called Titan – definitely the best gym we’ve ever seen! It was beautiful! The gym offers a concession to guests at the hotel.  Preetam joined for the week and really enjoyed his workouts.

All in all we had such a beautiful first family holiday full of such happy memories and I was so grateful to be able to share those with my parents and sister too! The beautiful premises and location of the hotel made it really hard to believe we were in Europe!

The lack of flexibility and desire to accommodate food wise was a little frustrating at times however the facilities for children, the staff friendliness and the premises were absolutely wonderful. The location of the hotel is also perfect.  We’d definitely return but would go back on a bed and breakfast option next time and venture out for lunch and dinner!

 

Disclosure: this is a sponsored post however all thoughts and opinions are our own.

 

Posted on 5 Comments

31 Interesting Facts About Down Syndrome!

 

If you’re following us on social media, you would’ve seen several facts about Down Syndrome throughout the month of October.  I hope we helped raise awareness and to show that Down Syndrome really isn’t the worse thing in the world! We wouldn’t change a single thing about Saajan – not even his Down Syndrome as he wouldn’t be him without it!

1. Down Syndrome is NOT an illness or a disease, people with Down Syndrome are not suffering. It is a genetic condition caused by the presence of an extra 21st chromosome. Nothing done before or during pregnancy can cause Down Syndrome. It occurs in all races, social classes and throughout the world and it can happen to anyone.

2. There is no such thing as “mild” or “moderate” Down Syndrome. You either have it or you don’t. (I remember frantically searching this every five minutes when Saajan was first born!). Just like you and I, some may finding riding a bike really easy where others may find it a challenge and others may find maths difficult where others may find it a doddle! It’s taken a while for Saajan to be able to sit up independently (8 months) but he’s been able to hold his own bottle from about 5 months for a few minutes!

We all possess different strengths and weaknesses but sadly labels can often define those with learning difficulties.

3. The typical physical features associated with Down Syndrome are a short neck, a small head, small ears which may fold over at the top, small mouth, almond shaped eyes, a large gap between their first and second toe, a single crease across their palm and a sticky outie tongue (will cover this in another fact). A person with Down syndrome may have several or only a few of these physical features. Saajan has small ears (without the fold for now), a small mouth, low muscle tone, almond shaped eyes, a single crease across his palms and a sticky outie tongue. His eyes, low muscle tone and the single crease on his palms were what made the midwife suspect he had Down Syndrome.

4. The physical characteristics of a person with Down Syndrome does not determine the level of learning difficulty an individual may have. I often get told “Saajan doesn’t so obviously look like he has Down Syndrome, he’ll be fine”. He’ll definitely be fine (just like anyone with Down Syndrome!) but how he looks doesn’t have any direct correlation to his learning difficulty. The same way that someone with prominent physical features may have a mild learning difficulty!

 

5. If you know someone who has had a baby with Down Syndrome or is pregnant with a baby with Down Syndrome, congratulate them. Don’t be sorry! It isn’t a catastrophe – they’re regular people like you and I! Every life is worth celebrating.

Although it’s taken time to ride the journey of acceptance, right now, we have never been happier as a family – as each day passes we realise why Saajan was meant to be a part of our little family. We consider ourselves “the lucky few”!

6. People with Down Syndrome are more like their families than different. Saajan may have almond shaped eyes, cute ears and may stick his tongue out more often than not but so does his daddy! He looks just like Preetam when he was born and also looks like his baby brother.

Physical features aside, although still a little bub, Saajan definitely shares Preetam’s love for bikes even more so than Arjun! We always joke that we can imagine him tattooed up, with his spiked hair and a sleeveless vest on on a Harley! 😀

7. There are three types of Down Syndrome.

Trisomy 21 (Non-disjunction): this is where an error occurs in the typical division of cells where an embryo develops three copies of chromosome 21 rather than two. Prior to conception, a pair of 21st chromosomes in either the egg or sperm fail to separate causing an additional chromosome to be replicated through all cells in the body. Trisomy 21 accounts for 95% of all cases of Down Syndrome. Saajan has Trisomy 21.
Translocation: this is where part of chromosome 21 breaks down during cell division and attaches to another chromosome, usually 14. The total number of chromosomes are still 46 however the presence of an extra part of chromosome 21 leads to the characteristics of Down Syndrome. Translocation accounts for about 4% of cases of Down syndrome.
Mosaicism: this occurs when the non-disjunction of chromosome 21 takes place in one – but not all – cells during initial divisions after fertilisation. This leads to some cells containing the normal 46 while others contain 47 chromosomes. Cells with 47 chromosomes contain an extra copy of chromosome 21.

8. Siblings … I remember when Saajan was first born, I cried from the pit of my stomach with guilt about how devastating this would be for Arjun and how it would ruin his life. I cried as I grieved for our shattered dreams – for Arjun to have a best friend for life.

How silly was I!

Right now, Arjun sees no different. HE is the one that taught me to love Saajan unconditionally, to see him as Saajan and nothing else. He is the one that has taught me patience, he is Saajan’s biggest cheerleader who bursts with pride at the smallest achievement, the one that patiently helps his brother reach milestones and his protector. Saajan has an instant calming effect on Arjun when he’s feeling stressed or having a tantrum – he literally breaths for his little brother.

Research states that over 96% of siblings are proud of their brother or sister with Down Syndrome and over 88% feel that they are better people because of their sibling with Down Syndrome. Those are pretty overwhelming stats!

I really do believe that Arjun will be the best rounded individual by having Saajan as his brother. He’ll learn to be patient, compassionate and humble always. Likewise, Saajan is so lucky to have Arjun – he has so much love and time for his little brother and I have no doubt that Arjun will help him flourish!

I’m sure in the years to come it won’t all be a bed of roses when these two are fighting like typical siblings or when they’re plotting against me, but their relationship is the most precious one I’ve witnessed and it makes my heart burst with pride. I am so blessed to be their mama and they are so blessed to have each other! This is a picture from the other night where Arjun shifted seats at dinner to sit next to Saajan as he wanted to feed him

9. One of the greatest challenges for people with Down syndrome is low muscle tone/hyptonia. Low muscle tone affects speech, gross motor skills, and fine motor skills.

From four months, Saajan received early intervention to help support him in these areas. Currently we have physiotherapy and speech and language therapy.

For those of you in the UK, I’d highly recommend the charity, Sparkles, there is a very noticeable change after every session we’ve had!

Having low muscle tone makes the tasks we take for granted such as lifting food to our mouth, sitting up or controlling our muscles such as our tongue a lot harder for babies with Down Syndrome.

It just mean we get to enjoy every single stage for a little bit longer and we celebrate harder when Saajan does reach a milestone as we know how much effort and energy goes in to achieving each and every one!

10. Historically, children born with Down Syndrome were sent to mental institutions. oh how grateful I am that Saajan was born in this day and age where there is so much support available to help these individuals flourish!

Now adults with Down Syndrome contribute to society more than ever and in some cases absolutely thrash society’s misconceptions – saving lives – Valerio from Italy recently saved a girl from downing; starting their own businesses – such as John Cronin (John’s Crazy Socks), or Collette Divitto’s own cookie business after being denied a job; staring in their own tv show – Born This Way; participating in the special Olympics and thrashing them – Chelsea Werner; and there are even supermodels with Down Syndrome – Madeline Stuart!

Don’t limit … there should be no such thing “disabilities”, just different abilities!

11. People aren’t Downs, they HAVE Down Syndrome. Please be mindful of terminology as saying “Saajan IS Down Syndrome” is labelling him, limiting him and defining him. It’s a very small part of him. Saajan is Saajan who loves being tickled, loves baked beans, loves cuddles with his brother and really doesn’t like bath time! His favourite nursery rhyme is the wheels on the bus which was one of Arjun’s favourites too! … and he happens to have Down Syndrome.

12. People with Down Syndrome experience regular emotions like you and I – sadness, excitement, anger … It’s a myth that they’re always happy … it’s definitely true though that his smile is enough to melt your heart though!

Here’s a picture of Saajan having a full blown meltdown because I stopped him from eating sand!

13. No two people are the same. Just because you’ve met one person with Down Syndrome, doesn’t mean you’ve met them all! Just like chromosmally unenhanced () individuals have different tastes, personalities, looks and traits, the same goes for those with Down Syndrome! They’re all different!

14. Down Syndrome is the most common genetic condition. Two babies with Down syndrome are born every day in the UK. Around one in every 1,000 babies born will have Down Syndrome. It’s kind of like winning the lottery hence the term “the lucky few”! There are 60,000 people in the UK with the condition. I realised just how common it was when we went on holiday and saw five people with Down Syndrome in just a week!

15. One of my biggest fears when Saajan was born was that “my life was over” quite selfishly.

As time has gone on, thanks to social media and organisations such as The Down Syndrome Association and seeing others along the way, I’ve quickly learnt that actually adults with Down Syndrome don’t live with their parents forever. Many live independently and thrive!

16. It’s true that many children (approximately 50%) with Down Syndrome are born with heart defects.

The most common defect to affect children with Down Syndrome is a septal defect. This is a hole inside one of the walls that separate the four chambers of the heart, often referred to as a “hole in the heart”. Saajan’s was undetected at birth and it was lucky we caught it when we did. We are so grateful to our surgeon, his team and all the staff at The Royal Brompton for fixing our baby’s heart and taking such amazing care of him. It was a tough time but now feels like a distant memory and we hope it stays that way! We’ve shared our story on the blog.

We’re currently raising money for The Brompton Fountain to celebrate Saajan’s new lease o life – if you have any spare change to contribute to such a worthy cause, we’d be so grateful

17. Kids and adults with Down Syndrome are aware of how people perceive them … and they care. They have feelings just like you and I. They are human beings and understand just like you and I.

Saajan’s very in tune – he cries when he’s told off, smiles when he sees his favourite people, gets mad when we take long to give him his food and squeals when he’s excited – usually when playing with Arjun!

Just because he has Down Syndrome, doesn’t mean he’s not human!

18. The word “down” in “Down Syndrome” has a negative connotation and many assume (me included!) it is because it describes the condition. Those thoughts almost make you pity someone with Down Syndrome assuming they’re unhappy.

Actually it has nothing to do with the condition! “Down Syndrome” is not meant to describe those with the condition as being “down” instead, like many medical conditions, it is named after a physician who described the condition – Dr. John Langdon Down. There really is nothing down about it!

Oh how I wish John had a different surname to avoid the above confusion!

19. It’s true that the likelihood of having a child with Down Syndrome increases with the age of the mother, especially after 35. However, most children with Down syndrome are born to women younger than 35 years old simply because younger women have more children. I was 29 when I had Arjun and 31 when I had Saajan.

Part proceeds of all navy and yellow clouds sold at BabyBrainApparel.com go to The Down Syndrome Association. All leggings are handmade by me 🙂
20. Adults with Down syndrome are not children, and shouldn’t be treated like children. They enjoy activities and companionship with other adults, and have similar needs and feelings as their typical peers.

21. The word “r*tard” is highly offensive regardless of the context that it’s used in.

The definition of the word “r*tard” is someone who has a learning difficulty or delay. Sadly, the word is used so freely today as a way to try and insult people and is disrespectful to those who do actually have a form of delay or difficulty learning – a condition they have which is out of their control. Although many use the term flippantly and don’t mean any harm, in doing so they are demonstrating ignorance.

22. Most children with Down Syndrome do best in an inclusive learning environment, and it’s equally important for typical kids to learn about diversity, kindness, and friendship at an early age. Inclusive classrooms, where possible, benefit all kids. Encourage your children to be friends with everyone regardless of race, gender or ability and to celebrate differences! We weren’t born to be the same!

23. People with Down’s Syndrome are able to and want to work. Sometimes opportunities can be limited due to misconceptions due to a label and making an assumption about what people can and can’t do.

Research suggests that in the UK, 65% of those with Down Syndrome want to work and currently only 20% are in employment illuminating a need to bridge the gap.

The Down Syndrome Association, launched their WorkFit programme in 2012, designed to turn the ‘supported employment’ concept on its head. WorkFit is a tailored service dedicated to training employers about the Down’s Syndrome learning profile and about finding the right employment opportunities for the right people. There are currently 226 companies registered to the programme including Costa Coffee and Premier Inn! Tesco and Sainsburys are also among the larger employers that support those with Down Syndrome.

If you own a business, please don’t assume those with Down Syndrome are unable to work. It just takes them a tad longer to learn but they’re fully capable! It’s all about celebrating DIFFERENT ABILITIES.

24. Did you know that a baby with Down Syndrome can be aborted at up to 40 weeks? I had both my babies at 39 weeks. One week before the permitted time to be able to abort. 40 weeks – full term. A fully formed baby. A person. A human being. A life. A future. Just like you and I.

Why? Because they have an extra chromosome? Just because they have Down Syndrome?! Is Saajan not worthy of life?

There are so many other non life threatening mild to moderate disabilities that you’re unable to screen for. There seems to be such a negative stigma attached to Down Syndrome that has made it ok to be able to abort at such a final stage.

Why is it that if you don’t have a “perfect” baby, he or she doesn’t deserve to live? That it’s ok to eradicate their life at the last minute?! Hopefully my posts this month have highlighted what fulfilling lives people with Down Syndrome can live – how much they can achieve and how much they contribute to society.

I’m totally for pro choice and doing what’s right for you if you’ve been given accurate and realistic information before making that choice. In many people’s experience, the delivery of the news is somewhat guiding of what happens next. Medical professionals begin to give you their opinion on what your life may be like with a child with Down Syndrome – most of which have no first hand experience. Actually a more helpful approach would be to introduce parents in that position to families who have first hand experience to gain a truer and fairer picture before making such a huge decision.

Many parents (like we were) have an image of what Down Syndrome is. They’re told what “risk” they have of having a baby with Down Syndrome. The word “risk” automatically makes us assume there is a danger associated with the condition, there is something to fear. Having first hand experience, I can tell you there is nothing dangerous about Saajan.

To be honest, I’m glad we weren’t given a choice. The thought of knowing that there may have even been a smidge of a chance that Saajan may not be here makes me feel sick to the pit of my stomach. And having had several encounters with some medical professionals that were offering us their condolences post his birth, it’s heartbreaking knowing that those same conversations prenatally would steer many people down the path of termination.

25. As recently as the 80s, the average lifespan of someone with Down Syndrome was a mere 25 years. In 1900, life expectancy was even more shocking at 9 years old. Today, they have a life expectancy of 60 and many go on to live to their seventies. Previously the lower life span is predominantly due to the inhumane institutionalization of people with Down Syndrome. Today people with Down Syndrome are very much a part of society and there is great improvement in the health care provided for them.

26. “Did you not have the tests done” – this is possibly the most hurtful question and I get asked it often. Not the question itself, but usually the underlying belief that if we’d known before Saajan was born, we would have terminated as many parents do. I was asked this question just a few weeks after Saajan was born when I was in a really bad space mentally and the “friend” kindly proceeded to tell me that had their tests come back positive for Down Syndrome they would have terminated their pregnancy – confirming her belief that our baby that was lying right in front of her, isn’t worthy of life.

I do appreciate that many people ask out of curiosity and actually not all those that have a positive Down Syndrome antenatal diagnosis terminate. Perhaps it’s my personal experience that now dictates how I feel!

27. It’s a myth that babies with Down Syndrome can’t be breastfed due to low muscle tone and larger tongues. I managed to breast feed Saajan and he latched on even better than Arjun. My breast milk is what got him out of the incubator when he was in NICU.

28. Down Syndrome cannot be “cured” the same way you can’t permanently change someone’s hair colour. It is a part of an individual’s genetic make up. Although the chromosomal make up cannot be changed, science and doctors are continuously improving the management of health issues associated with Down Syndrome.

29. Some of the common health problems associated with Down Syndrome are heart defects, thyroid, hearing and vision problems. All of which are managed through regular screening. Virtually all health issues that occur in people with Down Syndrome also occur in the wider population.

30. Those with Down Syndrome are often visual learners just like I am! This has often been linked to partial hearing difficulties which can sometimes lead to a delay in speech due to physical, as opposed to mental, challenges.

31. Research has shown that 99% of people with Down Syndrome are happy with their life!

Help us to spread awareness about what Down Syndrome really is! x

Posted on Leave a comment

Saajan’s Fun with Food! | Organix #NoJunkJourney

As well as the gorgeous sun, sea and sand and a much needed break, our recent trip to Gran Canaria also welcomed a little acceleration in Saajan’s weaning journey thanks to daddy! Where I’m a little cautious, Preetam is a lot more of a “hand me the reigns” kinda guy and it definitely helps!

More so with Saajan due to his low muscle tone, I’m always fearful of giving him new textures incase he struggles to swallow. I’ve stuck to purées for a while now and actually I probably didn’t realise but it wouldn’t have been helping his aspiration (aspiration is where sometimes thinner fluids travel to the lungs which can be dangerous) much! Being a little OCD and not particularly excited by the thought of a toddler covered in a bright orange purée, I’ve also probably not gone full throttle with baby led weaning.

Being on holiday and having access to various foods (with the added bonus of not having to clear up heehee) and having daddy on hand was the perfect setting to kick start Saajan’s weaning journey to explore different shapes, textures and tastes! We had many first foods there and it was pretty exciting – I feel so proud of how far Saajan has come along!

As Saajan often finds it a little difficult to hold food in his hands for a long time and struggles to steadily bring it up to his mouth, we’ve adopted a combined approach to weaning since the beginning. Even when I was feeding him purees, I’d hand him a piece of food or his own spoon in his hand to build up his strength and encourage his fine motor skills. Organix sweetcorn rings have played a pivotal role in that as they are the perfect size and weight for him to be able to hold and put in his mouth and the melty texture means I don’t panic about him choking.

Some tips:

  • As per my previous guidance with Arjun, we introduced one new food at a time just in case Saajan had an allergic reaction.
  • Don’t be scared! I didn’t even think of introducing whole foods such as baked beans to Saajan but he absolutely loved them and although he has no teeth, his strong gums meant he was able to chew them – again encouraging the use of his muscles in his mouth.

  • Let your baby guide you – We didn’t introduce egg in to Arjun’s diet till well after he was one and he still doesn’t really eat it. Saajan on the other hand helped himself to a piece of Spanish omelette on Preetam’s plate and it ended up being one of his favourite things to eat while we were away. He also leaped and grabbed a profiterole off his plate and put it straight in to his mouth! – definitely wouldn’t have guessed he has low muscle tone then! Haha!
  • If at first you don’t succeed, try again! Touch wood, Saajan enjoys his food a lot more than Arjun however there are still some foods he’s unsure of. Cheese isn’t something he’ll naturally go for so now I mix it in to his egg or baked beans for a little extra protein and fat.

  • Offer a mixture of textures, shapes and colours – this was a lot easier to do on holiday! A typical plate would consist of pasta shells, broccoli, cheese and a little bread. At home I also like to offer a variety for Saajan to try.
  • Get the siblings involved! Saajan is really encouraged by Arjun – he often wants to get involved in helping Saajan to eat.


 

  • Bigger is better! For Saajan, larger items of food are much easier for him to eat. For example, strips of toast are easier for him to eat than smaller squares, whole pieces of broccoli stems and chunkier pieces of fruit.

I’ve shared some tips from Organix’ children’s food expert, Lucy Thomas to help your toddler have fun exploring foods and learning to enjoy new tastes and textures, even those they may be fussy about!

 

Disclosure: this is a sponsored post either in the form of remuneration or a free product being sent to us for review however all thoughts and opinions are our own.

 

 

:

Posted on 2 Comments

A Short Break to Santorini with a Toddler!

This post is ridiculously late (a year and a half!)– this always happens with holiday posts as I have a gazillion pictures and always struggle to short list them! Still no excuse!

We travelled to Santorini in July last year before Saajan was born. It’s not the first place that springs to most peoples minds when it comes to travelling with a toddler, but given it was only for a few days we thought “why not”!

We normally plan our holidays a few months in advance at the very least as I’m one of “those” people. However, this was a last minute trip (we booked it a week or two in advance) and it was all a little bit crazy!! It meant I had no time to absorb that we were going and couldn’t quite get myself in to the “mode”. I guess booking last minute doesn’t allow you to build up such high expectations though we did pay an arm and a leg for this trip as Preetam was set on visiting Santorini. I’ve never left packing till the day before. Talk about living life on the edge!

A word of advice (which I really should’ve taken) when booking a holiday – look at the sale page on airline websites, not just the homepage search engine or don’t be extra silly like I was and turn straight to middlemen travel booking sites such as Expedia!! Though sometimes you may find great deals on travel supermarket sites, often you’ll pick up great deals on airline sale pages too. We ended up paying almost double – my mistake!

 

THE FLIGHT

Pre warning – I didn’t even think to check the small print as having to pay for check in luggage is something I associate with budget no frill airlines not airlines that charge approx £6/700 for an economy class ticket to Santorini. We flew with British Airways and upon online check in, we realised our flights didn’t include checked in luggage so we had to pay an extra £40 PER suitcase PER flight. Day light robbery! I was not pleased at all!

If I thought that was as bad as our holiday plans were going to get … I was wrong! We arrived at the airport and got there 40 minutes before baggage drop off opened, we decided to have breakfast. After filling our hungry bellies, Preetam queued up to drop our luggage – the queues were crazy and definitely not something we are used to! Arjun was patient for the most part but he did get antsy after half an hour or so, so I took him to WH Smiths to pick a magazine or two. Good timing as Preetam was done just as we left the shop. As we approached security I realised that our hand luggage trolley containing Arjun’s (milk, snacks, toys, comfort blanket, change of clothes, hoody, medicine, my medicine) was missing! I assumed Preetam may have accidentally checked it in but we quickly realised we’d left it at home! We had an hour till our flight boarded and there was no way he’d make it home and back in time. The only thing that was in there that I really needed was my blood pressure medicine especially given I was at the early stages of my pregnancy then.

The staff at the airport were absolutely amazing in helping us come up with a plan. FYI if you do forget your medication, Boots pharmacy are very helpful in trying to source it, my issue was I’d had my medicine changed a few days before and I didn’t know the dose. In the end Preetam’s dad and brother kindly rushed to our house, got the medicine and bought it to the airport check in desk. The staff quickly got it through security and to us 15 minutes before boarding! Phew! During that time, I frantically rushed to get the remaining bits that were in the suitcase as unfortunately it wouldn’t have been possible to get a whole suitcase through. In the end we ended up with Arjun’s change bag, my handbag, Preetams rucksack and a whole bunch of carrier bags! What a disaster! To say Preetam and I wanted to kill each other was an understatement but we luckily has a swift moment where we just looked at each other and cracked up – this isn’t the first time we’ve left that damn trolley at home! Last time we realised just as we got to the airport and had enough time to go back. What a start to our trip!

Luckily as soon as we got to the gate, we were kindly escorted to the front as we had Arjun. We were the only ones travelling with a child. It made me feel a tad uneasy. This was the first time he was going to have his own seat and I had no idea how he was going to react. Here were all these couples looking for a romantic getaway and here we were the annoying inconsiderate family onboard!

We’ve not travelled short haul with Arjun before so I was pretty excited for the 3hr 20m flight. I’m not a great flyer and to be honest, I’m pretty useless with Arjun – Preetam generally manages him when we fly as I struggle to stay awake on an airplane.

Arjun was an absolute gem for the most part. I was SO proud of him on take off – this is the first time he was fully awake and didn’t have Preetam’s Bose sound reducing headphones (we forgot those at home too!), or milk and he enjoyed it so much! We looked outside the window and watched the planes on the runway and he excitedly squealed “wee” as the plane took off. He was so excited to be in the sky and giggled as the plane steadied itself giving us little butterflies in out tummy. I was dreading the tears and had braced myself for the mean glares but he did me so proud.

During the flight, obviously we were without the toys I’d packed but the magazines Arjun had selected at the airport included little toys and we only had to open the Thomas the Tank Engine one to keep him entertained for ages. He also enjoyed watching Paw Patrol on the iPad (something we didn’t forget! Yippee!) and playing a colouring game on the iPad. I’d highly recommend taking an iPad on a short haul flight as you don’t get individual TV screens.

I was impressed by the standard of lunch on the plane – it was provided by Urban Eat.

Although it was a short flight, it did feel pretty long!

HIRE CAR

We decided to hire a car in Santorini as we only had a few days and wanted to make the most of them. We hired a Fiat 500 and picked it up from the airport. The hotel had helped us to arrange this. We’d requested a car seat and we had no issues with obtaining one once there.

HOTEL

We decided to stay at a non cliff located hotel just because of safety with a little gizmo toddler. We found Astro Palace Suites and it seemed to fit the bill – it looked luxurious, had beautiful views from the pool but had the safety of being slightly more inland.

 

The hotel staff were so friendly and helpful even before we got there.

The rooms themselves are very clean, spacious and the décor is shades of whites and greys and have an airy and tranquil feel. The bathrooms aren’t huge but they were sufficient.

Though we didn’t request one, the hotel had kindly provided a travel cot knowing we were travelling with a toddler. He didn’t end up sleeping in it at night but did use it to play in during the day.

The beds were really comfortable but unfortunately I struggled to sleep – it may have been pregnancy insomnia or because I’m used to sleeping with a pregnancy pillow even when I’m not pregnant so I think it was just me!

We stayed in a room which came with a private pool as the hotel kindly upgraded us. The private pool was spectacular – so clean and well kept. Each pool has it’s own sun loungers and sofa sets. Don’t be mistaken though, the pools aren’t private in the literal sense. They’re private in the sense that it’s your own but your neighbours can see you. Arjun unfortunately didn’t quite get the concept and often ran towards neighbouring pools. Luckily it wasn’t very busy at the time we went. The pools aren’t heated so Preetam and I struggled to stay in too long as the breeze from the hilly make up of Santorini contributed to us feeling cold – it didn’t stop Arjun though!

The main pool has lots of sun loungers, seats and canopies and boasts a beautiful sea view although it can get really windy here. Our towel flew off the sun lounger while we were in the pool!

The spa is a quiet space – I was the only person there at the time which made sense as the beauty therapist informed me that she was the only one that worked there. She was a really friendly girl and although it wasn’t the best massage I’ve ever had, it was a pleasant experience! I didn’t use any of the other spa facilities.

We had dinner at the pool side bar on our first night and they were really accommodating. It was good to see Arjun finally eat something after days of a hunger strike – he enjoyed their cheese and tomato spaghetti and even ordered it himself. He also enjoyed the olives – we couldn’t come to Greece and not have olives! Their warm bread with balsamic vinegar and olive oil was divine. I loved the Greek salad too – everything tasted so fresh. There are quite a few vegetarian options on the menu which was good to see.

Breakfast quality was average but lots of choice especially for vegetarians. I’m comparing it to our recent holidays which is probably quite unfair! Dubai, Abu Dhabi, Bali and the Maldives are likely to be quite different!

PLACES TO EAT

For vegetarians, we found the selection a little narrow especially as I’m quite fussy which doesn’t help! Most places weren’t very adaptable. Here were some of our favourite places to eat while in Santorini (though they’re not Greek restaurants!):

Santo Wine Winery: This is a must to visit for the views alone. It was absolutely breath taking and I was in awe of natures beauty. It’s so peaceful and tranquil! They did the most amazing fresh virgin pina colada – something I’d been craving before arriving in Santorini! The picture I used for my pregnancy announcement was taken here.

Tabasco: This was an Italian restaurant located close to our hotel. The hospitality was great – Arjun’s cuteness even managed him a free dessert! Preetam managed to get a wide selection of sautéed vegetables and egg and I thoroughly enjoyed my pizza!

Senor Zobras: This Mexican restaurant was undoubtedly our favourite. Not only was the food amazing, but it had the best uninterrupted views. The atmosphere was really chilled out. We enjoyed the nachos and quesadilla and the wedges were delicious too. We’d highly recommend this.

PLACES TO SEE

To be honest, we didn’t have any grand plans when we set off to Santorini. We literally hired the car and drove around with our music blasting, windows down and absorbing the beautiful scenic views around us. Santorini is quite a small place meaning every direction you turn, the view is wow. I don’t think we would have enjoyed our trip as much as we did had we not hired a car – walking around with a toddler would have proved difficult and I probably would have struggled being pregnant too. Also from a safety perspective, there are lots of open cliffy areas, I wouldn’t want to risk Arjun running off. Where we came to such spots, we’d park up and pop out individually as opposed to taking Arjun out of his car seat as we weren’t prepared to risk it. Many young, child free couples hire quad bikes in Santorini – something Preetam and I do wish we’d done before we had kids!

Perissa: Perissa is a beautiful black sand beach. Be careful to not burn your feet as its very hot! We really enjoyed our time here – I loved watching Arjun and Preetam in the sea – Arjun’s naivety at how dangerous something so beautiful can be but watching how safe he felt with his daddy. It was definitely a moment of reflection for me.

Oia: Oia is a cute little town with lots of culture – the famous pictures of Santorini with the white buildings is taken here. It boasts really scenic views and is the best place to watch the sunset … if you manage to get a comfortable spot. It’s extremely busy as a popular tourist spot. There are lots of steps and narrow pathways – something to be mindful of if you are taking a buggy.

Ancient Thira: This was located at the very top of a mountain which many people were walking to. The roads are super narrow and it was super scary driving up! The views were absolutely breath taking – it looked like a post card. It was extremely windy at the top – I didn’t get out of the car and would definitely not recommend taking a baby out.

Kamari: This was another beach area which had lots of restaurants located on the beach. We stopped off at Vassilikos for a spot of lunch – they were really accommodating with our dietary requirements.  The view was beautiful with the sea crashing against the shore just a few meters away from where we were sat. Arjun was more interested in stripping off and getting in the sea than his lunch! If you have lunch at the restaurants, you’re entitled to free sun loungers directly in front of the restaurant, however we found the sea quite deep and the beach itself very busy so didn’t stay long.

All in all we had a lovely short break. Greek hospitality was fabulous – everyone was so friendly especially towards Arjun! Many fell in love with his quirky personality and he even got free ice cream sent to our table over lunch by a couple who said he reminded them of their grandson! The friendliness and warmth of the Greek really made our trip so much more enjoyable.

 

Disclosure: this is a sponsored post either in the form of remuneration or a free product being sent to us for review however all thoughts and opinions are our own.

Posted on Leave a comment

Down Syndrome Awareness Baby Brain Apparel Mummy & Baby Leggings Giveaway

If you follow me on social media, you’ll know October is Down Syndrome Awareness Month. To celebrate our beautiful boys, Sarah and I are teaming up to host a fabulous giveaway!

A little background …

As you may or may not know, I originally started my blog back in 2014 as an outlet for my journey riding through post natal depression and the highs and lows of motherhood with my first son, Arjun. Since then, I recently gave birth to my second baby boy, Saajan, who happens to be rocking an extra chromosome! Since my husbands moving post on sharing the news about our precious little boy, I’ve not blogged much as I still don’t feel ready but I’m sharing our journey through social media and have received an outpour of love for Saajy from our blog followers! Aside from his extra chromosome and a few extra physio appointments (which I see as brilliant family time now!), we are living a pretty regular life. Arjun and Saajan have the most beautiful brotherly relationship but I’m sure soon enough there’ll be plenty of squabbling!

I started my spin off business, Baby Brain Apparel, in 2015. I make handmade baby and toddler leggings and do a matching adult range too which includes leggings and lounge pants! I hand designed character tees which were inspired by the quirky antics of my toddler Arjun. Since having Saajan, Baby Brain Apparel has an even greater meaning for my family and I with it being uncertain when I will return to work. Although I’m still riding through the journey of having two tiny humans to keep alive alongside a Down Syndrome diagnosis(!), I have began to focus my energy on raising awareness in hope for a brighter future for children like Saajan and Oscar. Part proceeds of all navy and yellow clouds sold at Baby Brain Apparel will be donated to The Down Syndrome Association.

Sarah writes the blog “Don’t Be Sorry” primarily all about her son Oscar, 5, who happens to have Down Syndrome. Sarah literally held my hand during a very dark time when Saajan was first diagnosed with Down Syndrome at a few hours old and continues to do so! Sarah’s support has been invaluable and I often turn to her blog when looking in to the future. She originally started writing, as she found it cathartic to document her thoughts and feelings following his postnatal diagnosis. And then one day, having decided to publish her words on her own private Facebook page, she received such an overwhelming response, she very quickly launched a website and public Facebook page.

What started as just a handful of people following her journey with Oscar, has grown into a following of close to 30,000 people. Sarah regularly talks to “new” Mums and Dads online following the news that their babies have received the same diagnosis as Oscar which she hopes helps them when they may be feeling like the future’s looking bleak.

She also gives talks to medical professionals regarding the importance of language and terminology when delivering news to expectant or new parents, as well as professionals in education, regarding integration and inclusion of children with Down Syndrome. Sarah recently featured on BBC News when a Facebook post about using appropriate terminology when delivering the news to new parents about a Down Syndrome diagnosis went viral. Sarah’s latest venture is that she’s busy writing a book too!

The blog though is as much about her other two children, Alfie,3 and Flo,2. She hopes that people see them as just your average family, leading a pretty full and fabulous life, despite it not panning out the way they thought it would. Oscar brings both Sarah and her husband Chris immeasurable amounts of joy and she hopes that that comes across, (with the warts and all approach) on her page. I’ve taken much comfort in Sarah and Chris’ journey with Oscar and their family.

To celebrate our beautiful children, Sarah and I are giving one of our readers the chance to win a matching pair of adult and baby leggings in a choice of navy or yellow clouds!! They’re tried and tested and have definitely passed the comfort test!

The competition is open worldwide however postage is covered for the UK only.

Competition closes at midnight on 17th October!

It’s super quick and easy, click on the link (“Enter the Giveaway”) below to enter!

Enter the Giveaway

Posted on Leave a comment

Paw Patrol Live VIP Reception & Gala Performance Review

One of my absolute favourite things about blogging is the opportunities it opens up for Arjun and Saajan! As you all know, Arjun is the biggest Paw Patrol fan! He is often caught enthusiastically role playing with his army of Paw Patrol toys! So you can imagine his delight when we were invited to the Paw Patrol VIP reception followed by the show at Wembley Arena which was like being in heaven for any Paw Patrol fanatic! We were kindly offered to bring a friend and we decided to take Arjun’s best bud Jovan and his mummy. The boys had a blast and Arjun cried at the end of the show as he didn’t want to leave!

 

Prior to the show, Arjun was sent a Rubble teddy and Paw Patrol blanket – he really believed that it had been sent by Ryder!

The VIP reception included lots of fun for the boys including a balloon modeler (who was requested to make a dinosaur and kindly obliged though he’s not done one before!), face painting – both boys decided they wanted to be Spiderman (!). The food spread was lovely and they catered for vegetarians really well! I enjoyed a halloumi and roast vegetable burger and chips and Arjun enjoyed a cheese and onion sandwich with chips. The dessert of bone shaped cookies and ice cream was also yum! The boys both received a goody bag which included lots of fun bits!

After the reception, we watched the show and the boys were both star struck! The storyline is about an adventure for the pups to find Mayor Goodway and Chickaletta. Once they are rescued, they then help her to find clues needed to reach the finish line in her race against the naughty Mayor Humdinger. Just like the show, the pups get the opportunity to show off their skills during the production and work together to find clues and help Mayor Goodway. Everest makes an appearance during the show too which was a nice surprise!

The show was full of bright colours, lots of singing (including my favourite – “pup pup boogie!”) and vibrant set designs. The actors were great at engaging the audience. Although it was obvious that someone was inside each character costume, the boys seemed unphased and seemed to genuinely believe that the pups were infront of them! The show was full of high energy and at an hour long, it was just the right amount of time to keep a 3 year old entertained!

After the show, the boys got to meet Chase – they were so excited! Arjun was literally gob smacked..!

The boys went home very happy and excited! I’d highly recommend the show to anyone with a Paw Patrol fan! Tickets can be purchased here.

 

Disclosure: we were invited to the show however all thoughts and opinions are our own.

 

Posted on Leave a comment

Our Favourite Special Educational Needs (SEN) Toys

Most children like bright and textured toys, however with Saajan, due to his developmental delays, I’ve had to seek toys that he finds extra exciting to motivate him to do things such as reach out, grasp or roll over. Textures have been important in encouraging the use of his hands – we almost have to remind him of his arms and hands for him to use them! The use of stimulating toys in achieving milestones has been imperative in our journey. Sian, Saajan’s key worker has helped us along the way with different suggestions and we’ve stumbled upon some ourselves.

 

Here are our favourite toys!

Flashing finger gloves: these are both great for varying texture and the flashing lights always engage Saajan.

Flashing spike balls: these are both great for varying texture and the flashing lights always engage Saajan.  The size of these balls and the spikes makes it easier for Saajan to flick the ball.

Light up pillow: This pillow comes with a remote whereby the colour can be changed – it’s a great distraction for tummy time which Saajan really dislikes! The furry texture is also soft on the hands.

Spikey light up batons: these are similar to the flashing spike balls in terms of texture, but the baton part lights up with this toy. Saajan found it easier to grasp the baton part.

Lamaze toys: I’m a great fan of Lamaze toys – they’re bright, make different manual sounds and have varied textures. Saajan’s favourites are the Tug & Play Knot which he found easy to grip due to the weight distribution and design of the toy, the Flip Flap Dragon as he loves watching the wings flap and also loves chewing on the tail! Saajan also loves all things crunchy – his favourite crunchy noise making book is the Lamaze Classic Discovery Book more for the sound than anything else!

Rainmaker: although Saajan is unable to grip the rainmaker himself, the sound it makes is a great way to get his attention – it helped us master rolling!

Bright Starts press & glow spinner: This toy spins around, plays music and has flashing lights. It’s been really useful in encouraging Saajan to roll and stay on his tummy and recently to help him sit.

 

Soft mirrors: Saaj absolutely loves looking at himself in the mirror! He often grasps the mirror and lifts it to look at himself.  It also helps hold his attention for long enough during tummy time.

What are your favourite toys?x
 

 

 

 

Posted on 1 Comment

Spinmaster Paw Patrol Life Size Lookout Tower Review

For those of you that have been following us for a while, you’ll know Arjun is the biggest Paw Patrol fan! Arjun was super lucky to receive his favourite birthday gift … from Ryder himself! We were very grateful when Spinmaster, the producers of Paw Patrol, kindly contacted us to send Arjun a birthday gift – a life sized lookout and a personal note from Ryder and his pups recruiting him – isn’t that every Paw Patrol fanatic’s dream?!

Arjun absolutely loves the lookout and plays with it on a daily basis! It’s a little shorter than Arjun but he can play with the telescope comfortably while standing up. The lookout control room has a little screen and control centre just like on TV! As you move the telescope, there is a manual screen with different images which resolves.
The tower is easy to assemble and comes with two vehicles. Arjun already had the other vehicles from other sets.

Where this life size tower differs from the smaller versions is its features. It doesn’t just look like the tower, it actually does what the tower in the show does. It’s brilliant! All mechanisms are manual however you do require batteries for the sound to play – it features some of Ryder and his pups famous sayings!

There is a little storage unit where the pups extra add ones can hook on – such as Marshall’s water cannon.

It comes with an actual lift that works and a slide which has a button to flip the pups in to their vehicles on the revolving base. I love that the parking spaces are colour coordinated to match the pups vehicles. There is also a pup launch pad in their parking spaces.

Arjun has hours of fun playing with the lookout and it’s only encouraged his imagination even more! He uses it in collaboration with some of his other Paw Patrol toys such as his Paw Patroller.

You can purchase the life size look out from Argos and other leading toy stores for £99.99.

Thank you Spinmaster!

Disclosure: this product was sent to us as a birthday gift however all thoughts and opinions are our own.

Posted on Leave a comment

Down Syndrome Diaries | When Your Heart Desires More of the Same

There are some people that are terrified of Down Syndrome … and then there are some who’s hearts desire more of it after unexpectedly experience it’s beauty.

When I first stumbled upon Kelsi’s Instagram page I was in absolute awe. Firstly, at how adorable both Colt and Nic are, secondly, I found the family’s story so compelling and thirdly, what a “normal” family they were! It’s a unique and beautiful story – one of pure love. If only this world had more people like Kelsi and her family and saw through the misconceptions and stereotypes associated with Down Syndrome.

With their seven brood family, they’re loving life and seeing their Instagram posts bring me so so much joy. As I progress through my journey of acceptance, families like this make me realise how lucky we really are. When we sit back and reflect on our lives the last 8 months, it has been the most difficult 8 months of our lives as we seek acceptance while dealing with health issues but also the most rewarding. Saajan himself has bought us and all those around him so much joy.

I want to thank Kelsi for sharing her family with the world – she has no idea how much joy she has bought me and how much my acceptance has come along by watching her love and desire for more of the same!

To think that an unborn baby with a Down Syndrome is coined the term a “risk” – do they look dangerous to you?! Maybe dangerously cute!

Here’s Kelsi’s story:

My name is Kelsi. I am the mama to seven children ranging in ages from 13-1 and you might already know about my passion for sharing the beauty of my two youngest with Down syndrome if you have ever visited my Instagram page at Downrightwonderful.

When our sixth child, Colt, was diagnosed with Down syndrome shortly after his birth his little something extra was a surprise, but it was something wonderful, changing our lives and hearts forever and led us to the adoption of our seventh child, Nic, who also happens to have an extra chromosome.

 

We learned that Colt was gifted with an extra chromosome shortly after his birth in July 2014. We knew that our son was “fearfully and wonderfully made” in the image of God and there are no mistakes.

Baby Colt

In Colt’s birth announcement we wanted to make it known that we celebrated his Down syndrome and had just as much joy with Colt as with our five others who have all developed at their own pace, and had their own little package of health and behavior issues with the only difference being that their “package” was not given a title or cute physical traits that might define their issues into a specific group.

I could carry on about his smile, hugs, perseverance, love, funny faces, endless goodnight kisses, dancing, signing, his insistence on waving at strangers until he gets a wave back, and more, that add so much joy and love to our family. But, Colt has added so much more than that to our lives.

Our love for Colt opened our eyes to our fear of discomfort, disabilities, pursuit of ease, and the safe road that keep us from the joy of living a life in a deeper trust in God and a deeper love for others.

We had never thought about adoption before but through our son’s birth our eyes were opened to the needs of children all around the world with a special calling to those with Down syndrome and special needs.

When we learned about Reece’s Rainbow, a ministry whose mission is to find families for orphans with Down syndrome, at our first Buddy Walk and read that in other parts of the world these children are viewed as outcasts with no ability to learn or be functional members of society, languishing in mental institutions, hidden away from the world in shame, our heart broke for these children. We saw their faces and pictured Colt being born into those circumstances. Our family knew that we must do something.

We stared at the babies on the Reece’s Rainbow web site for almost a year, saying that we will adopt “one day”. Then I saw the picture of this precious baby boy from Reece’s Rainbow on a friend’s Instagram page. He was only a few months old, abandoned to live his life in an orphanage because he had an extra chromosome.

Baby Nic – the first picture the family ever saw of him

That is when we realized that we would cross the ocean or give our lives for every single one of our children and the only thing holding us back from doing the same for a child, “our boy”, in an orphanage in Ukraine was fear and God is so much bigger then any of our fears. He is powerful and faithful and we needed to trust in Him with the details of the plans that He had laid out for our family.

Adoption was a crazy process but God did take care of every detail from the funding to the travel and every challenge that came along the way.

In January 2017, we arrived home from Ukraine with Nic. We celebrated his first birthday one week later. The first year of his life was spent alone in an orphanage crib but he celebrated his first birthday surrounded by a Mom, Dad and six siblings! What a beautiful day!

Nic has been home for over 7 months now and I can’t imagine life without him or if we had succumb to our worries and fears. We don’t pretend it is easy but we know that our “stillwater” that God leads us beside is not always comfort and ease but wherever it is that He has us, trusting in Him through it because His plans are so much greater and deeper then we could ever imagine for ourselves.

We continue to be amazed at the way Nic blossoms every single day. His smiles come easier and little things that we take for granted with our other children, such as a giggle when something delights him, can brighten our whole week. It’s amazing to watch the transforming power of love in him and also the way that he is transforming us.

The world seeks the beautiful, perfect, or “normal”. They are quick to abort, mourn over or throw out anyone they deem inconvenient, less worthy or less able. And these are the very ones that God has chosen to use to free us from these worldly pursuits and teach others in ways that none of those that the world considers “great”, “beautiful”, “rich” or “famous” could ever do.

I am so thankful for what these boys teach us and the love and joy that I get to experience and share because of them daily.

I hope that by sharing I can help others to see the beauty in Down syndrome but more importantly share the message that we are ALL created in the image of God, fearfully and wonderfully made, worthy of life and the sacrificial, unconditional love that God demonstrated for us.

Posted on 2 Comments

Afternoon Tea Themed Bridal Shower

As everyone knows, I love party planning – decorating is my absolute favourite thing to do at an event! My sister, Harv, and I recently hosted a surprise bridal shower for our other sister, Goov who will be getting married very soon. Goov is an absolute God send and we’re so grateful for everything that she does for us – we really wanted to give her a special send off.  I wanted every single little detail to be perfect!

 

I thought I’d share a few pictures of the decor. I’ve been asked lots of questions about our party bits, so I have a new Instagram page (Baby Brain Party Hire) where I’m going to start hiring our party bits out as we have SO much from Paw Patrol to jungle theme!

Goov was definitely surprised and we all had so much fun and everyone was in a semi food coma after the spread!